Post by russmclean on Jun 21, 2009 10:56:01 GMT
Last year, as part of a concerted effort the Freedom of Information Act was utilised to obtain copies of all letters faxes and emails of complaint that were sent to the MHRA about the coproxamol ban.
These paper sent back by the MHRA copies were forwarded to the likes of BBC journalist Julia George. That resulted in the BBC Breakfast TV expose in which the MHRA failed (in fact seriously misled) patients on how well their "Named Patient" scheme works. We were all reassured that we had no worries about supplies after the ban as there were effective safety net systems in place.
Aye right.
Anyway, the MHRA have stopped sending the copy letters out (I think we burnt their photocopier out with the sheer volume). Instead, I suspect because of the volumes of FOI requests they put the list up on the internet .....
www.mhra.gov.uk/home/groups/es-foi/documents/foidisclosure/con049136.pdf
So I am putting together a book called "Letters From The Edge - the Government Coproxamol Scandal".
The trouble is that the MHRA have copyrighted all the letters sent to them, and we are having trouble reproducing these in the book.
So here is my request. Please could readers of this forum either check for where their old complaint letters appear in the above website, and if you are OK with it, let me have permission to include the letter in the book (with personal details redacted - and we all now know what THAT word means thanks to our MP's !).
Alternatively please can contributers consider emailing a fresh letter of complaint to the MHRA, and copying it onto this site with permission for me to reproduce it in the book?
The end game is for the BBC Panorama to cover the issue then the European Court of Human Rights to rule on it. The book is part of that campaign.
Hope this all makes sense.
Very best regards,
Russ
These paper sent back by the MHRA copies were forwarded to the likes of BBC journalist Julia George. That resulted in the BBC Breakfast TV expose in which the MHRA failed (in fact seriously misled) patients on how well their "Named Patient" scheme works. We were all reassured that we had no worries about supplies after the ban as there were effective safety net systems in place.
Aye right.
Anyway, the MHRA have stopped sending the copy letters out (I think we burnt their photocopier out with the sheer volume). Instead, I suspect because of the volumes of FOI requests they put the list up on the internet .....
www.mhra.gov.uk/home/groups/es-foi/documents/foidisclosure/con049136.pdf
So I am putting together a book called "Letters From The Edge - the Government Coproxamol Scandal".
The trouble is that the MHRA have copyrighted all the letters sent to them, and we are having trouble reproducing these in the book.
So here is my request. Please could readers of this forum either check for where their old complaint letters appear in the above website, and if you are OK with it, let me have permission to include the letter in the book (with personal details redacted - and we all now know what THAT word means thanks to our MP's !).
Alternatively please can contributers consider emailing a fresh letter of complaint to the MHRA, and copying it onto this site with permission for me to reproduce it in the book?
The end game is for the BBC Panorama to cover the issue then the European Court of Human Rights to rule on it. The book is part of that campaign.
Hope this all makes sense.
Very best regards,
Russ